Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

About this grant

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the m Grant Number: CDC-RFA-DD-26-0222. Expected awards: 19.

Eligibility requirements

All of the following criteria must be met:

• Check official grant listing for detailed eligibility requirements
• Grant Number: CDC-RFA-DD-26-0222

What the funding covers

• Award Range: $166.4K to $488.6K
• Expected Number of Awards: 19
• Total Program Funding: $2.3M

How to apply

1. 1Check eligibility: Confirm your organization type (e.g., nonprofit, state government), project alignment, and deadlines from the opportunity synopsis.
2. 2Register: Create a Grants.gov account via Login.gov, complete SAM.gov and UEI registration, and authorize organization representatives (takes 2-4 weeks).
3. 3Prepare application: Select "Apply" to open Workspace, download forms (e.g., SF-424), complete offline/online with validation checks, and upload supporting docs like budgets and narratives.
4. 4Submit and track: Check package for errors, sign/submit via Authorized Organization Representative (AOR), and monitor status with your tracking number
5. 5Applications must be submitted through grants.gov
6. 6Grant Number: CDC-RFA-DD-26-0222
7. 7Posted: 2025-12-12

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